Friday, March 2, 2018

On Fading out verbal cues

Also knows as WHAT? IS? HAPPENING??????

So the other day when I shared the video of Dominic making scrambled eggs with significant verbal cues, how I left it was I'd asked his OT how to start fading back the cuing and giving him more independence.

Lasts night was night 2 of Magic socks, and our Liovi dose is up to 2oz.  Nothing else has changed.  The liovi ramp up has been ongoing for a few weeks now.

This morning Daddy had a conference and left the house at 630am.  I had a meeting at 7am and knew that I was going to need to play short order cook while the meeting was going on (Conference calls and working from home, for the win). I hustled through my shower, got the eggs gathered and ducks fed with Dominic and then realized I needed to get on the phone and start multitasking. I asked Dominic to please wash 3 eggs and I'd help him make breakfast in just a few minutes.

I got logged in, prepared for my meeting, which turned out to be next week not this, and my boss asked me a question.  That morphed into about 10 minutes of conversation with my boss and I smelled natural gas. I literally ran into the kitchen to deal with this, thinking i'd find a catastrophe.

Dominic had washed, broken and whisked his eggs.
He had turned on the burner (but not quite all the way, hence the smell) and put oil in the pan
He had poured his eggs into the pan
and they were almost done.

He grabbed a bowl of the granola he made with Ms Alyssa the other day and sat down to eat while i frantically texted Daddy what happened.

They are ridiculously over cooked - but he did them with zero cues

Blown.Away.  We totally just skipped weeks of gently reducing cuing.


Second anecdote of the day (i love it when there's 2).

Dominic has door to door bus service.  Every afternoon he comes up the door and rings the bell and waits for an adult to let him in the house.  He never just opens the door and comes in. IT took a long time to get him to safely maneuver himself off the bus and up the walk so I assumed we were in for another long time to transition to just coming in.


Today I was outside working and i heard the bell ring. By the time I got inside to open the door, he'd already done so. No Big Deal.

Thursday, March 1, 2018

Magic Socks

In the Autism community, there's a  phenomenon known as "I'll have what she's having".  What happens is that someone tries something, does well, tells their friends and their friends all try it.  About half of them do well, and half don't. They go tell people accordingly.  Rinse, repeat.

This is how we found the ioncleanse, its how we found Restore, its how we've found PMB... so many things.

I used to TRY THEM ALL, but i'm getting better about listening to my intuition.   When my friend shared about these Magic Socks from VOXX, my gut twanged. I, with almost no researching, signed up for the a wholesale account (yeah, its another mlm) and bought pairs for the whole family.  The gist of it is, there's technology woven into the fabric of the socks and into the ball of the insole that works to bring the brain stem (where we manage pain, autonomic nervous response, etc) into homeostasis. 

They're socks. 

I figured I was likely going to kick myself to spending money on really pricey socks.

They came last night. Dominic and I both wore them all night long and all day today.

First, me.
I get up at 5:30 every morning and get on the treadmill for 45 minutes.  I've done this every day this year.  And every day this year the first 5-8 minutes has been excruciating because my feet are all swollen from retaining water over night. Some days my feet are so swollen my shoes don't fit me. Its a big deal.
Until its not.
Zero swelling and pain this morning.
The other weird thing is that I get a migraine (officially dx'd now too) if my heart rate goes over about 150 exercising and since it usually bounces all over the place I spend the majority of my workouts staring at my heart rate monitor read out to make sure i don't push too hard.  I have gone over 150 every single workout this year.
Until i didn't.
this morning, I didn't break 150 AND i took my treadmill faster than I usually do.

Then Dominic.
Dominic has been under chiropractic care for 7 years.  The doc we see right now is a fellow special needs parent and totally gets us.  Dominic is tricky - he wiggles, and says OW whenever even touched, and hunches his shoulders and is generally pretty loud and uncooperative.  The Liovi and the dimes as motivator have been helpful, but have never gotten us an appointment without the word "ow" said multiple times, or the refusal to be adjusted.

Today I went first, and Dominic hung out in the waiting room playing on my phone. Doc got halfway through me and said "Wow, he's quiet today".  So I told him about the socks.  Then we brought Dominic in and he didn't make a peep the ENTIRE fricking time.  He allowed all the adjustment without a sound. No "Ow", nothing.
Doc was slackjawed.
And I had to ... i asked him if his socks were knocked off.  (I'm such a brat).

Anyway, time will tell how these do for us. At the moment, we're really really impressed.  If you're interested in more info, send me a note and i'll get you connected up (these are apparently really good for things like edema and diabetic neuropathy and chronic pain... ).     If you're local to me, I'll be putting a big order in sometime in the next few weeks and am happy to order a pair or two for you at my cost.

Tuesday, February 27, 2018

Magic Bullet Vs. A tool to go in the Toolbox

Treating autism is a weird journey.

First you have the fact that the etiology of autism varies by child.  So every kid's causative factor or tipping point event is going to be different, and that means that every kids treatments will be different. This is absolutely maddening and some days devastating - when you see a tool that works for someone else either not work for your kid or actually harm them.

Then you have the problem of the doctors.  The ones who are well versed in the weirdness of treating autism RARELY take any for of insurance, and the testing and treatments they offer are also very rarely covered by insurance.  We are personally out of pocket over half a million dollars at this point between therapies and travel (remember the 10 day trip to mexico to do HBOT?) and supplements (at one point we were averaging $900/mo in supplements alone).  We are very very fortunate that not only do I have a solid primary job, I also get paid (which amazes me) to be Dominic's CNA because of the particular medicaid waiver he is on. His disability is severe enough that the state pays me to parent.  Blows my mind.  I take it because we don't leave resources on the table.

Then you have the near constant churn of tools, therapies and products.  Many of them are presented by their manufacturers as THE ANSWER, and for many autism families they do well.  Those things that we've used successfully over the years and that remain in my ToolBox are:

IonCleanse by AMD footbaths
Restore prebiotic
Essential oils, anti viral herbals, and immune boosting vitamins
Chiropractic adjustments
Reflex integration (we've used an OT who was a Brain balance person who IS becoming a Musgatova person)
Intense speech therapy
PMB Hemp oil 
PEAPure (anti inflammatory out of Europe)
ABA (we still use the tools from our time at Alpine)
Dorfman Dyspraxia protocol (i pulse this about once a year)

Then there's the discarded tools - the ones that we used that no longer serve us for one reason or another, OR ones that we tried and massively tanked on, which I'm not going to list because we tried them, didn't mesh well, and moved on.

I was talking with one of my peers a few days back - An autism mama of a teenager, who has been in the trenches over a decade at this point. As have we.  We talked about how it seems ALL of the sudden there's a TON of new things for Autism families to try, and all of them are supposed to be  --MIRACLES!!!!

They are things like Liovi brand yogurt (we're just getting started on it, and I'm really impressed with Dominic's shift in compliance levels), The anti androgen protocol (been on about 6 weeks, getting ready to taper off. Didn't see anything bad, also didn't see anything amazing), Magic socks (this one is new, our first pairs will arrive soon. I'm very intrigued from a sensory and reflex stand point.  My aforementioned friend says "they're weird but they work"), some algae called Rens (that I literally know nothing about but the name), a plethora of nutritional stuff - Zennoa is on my radar, but my radar is F.U.L.L...

I do not expect any of these to be a magic bullet. I expect about half of them to have positive results, and maybe of those one or two will end up in my forever tool box.   When you've been in the trenches as long as we have (Dominic regressed around a decade ago, shortly after his third birthday.  Thats sobering to say), you rarely even get excited about anything, you document like crazy and you hope.  Hope is the only thing that we have going for us many days.

Monday, February 26, 2018

Scrambled eggs

Dominic's breakfast *for years* has been 3 hard fried eggs and a  bowl of oatmeal with dried fruit and honey in it.  A week or so ago, I offered him scrambled eggs because Rod and I were having them and I didn't want to do his fried ones separately. He was a total fan. It might have had something to do with the manchego cheese, which since it is made from sheeps milk doesn't trigger his dairy sensitivity.

Then the following Monday, he and his OT Miss Alyssa made egg cups, with sausage, broccoli and beaten eggs in muffin tins.  We use these as grab and go breakfasts.  There was extra egg mix so for dinner that evening I had him (because he'd been cooking anyway) just scramble what was left and eat it. He LOVED it.  To the point that he's been asking for scrambled eggs quite often.

ANd not just for breakfast.

Yesterday at 3:40 he asked for scrambled eggs, so i told him he could make some if he wanted to.  It still takes a good bit of verbal cueing to accomplish this sort of task, and I wanted to give you all an idea what that looks like.  And for the record, I am calling this successful because of the desire + focus + attendance to task + follow through.  And there were some funny asides, too.

Video 1 - my comment here is for those of you who've never cracked a duck egg before.  You really do have to hit it that hard, the shells are super thick compared to chicken eggs from the store.  To the point that if he ever does need to crack a store bought chicken egg, there's going to be egg everywhere. 

Video 2 - He was struggling to locate a whisk here and attempted whisking with assorted other tools before he got squared away.  The other voice you hear in the background is our roommate, Tim.

video 3 - This made me laugh when he decided that the rice steamer needed a towel.  I love his incredible focus on grating that manchego cheese, and how careful he was with the grater. I'm so glad i don't have a box grater because i'm sure he would grate his knuckles on one of those.

So the next thing I will be doing is fading myself and the verbal cues out.  Given what I know, that will be a slow process.  But for now - we are calling this a win.  And since my focus is on creating an independent human being - Being able to fix and feed himself a hot meal is a HUGE WIN!

Sunday, February 25, 2018


We are just finishing up week 2 of liovi (the powerful probiotic drink that we have been ramping up dosage of - we are currently at 1 3/4 tsp one time a day)

While we have absolutely seen him line his toys up along with scenes from movies for many years , and while he has absolutely scripted a word or two here and there while doing it - we have never gotten Dominic to answer questions about what is happening, or heard more that a few words of a scripted show

I took this video this morning. This is little but big and I cannot attribute it to any other intervention.  

Saturday, February 17, 2018

Caregiver Fatigue.

I wrote the below Thursday evening, and I was well and truely tired. I told my husband "I am weary".  I told my online friends I was too burnt out to even answer a question from a newer mom about learning how to muscle test.  I hit the line in the sand that tells me I have caregiver fatigue.  An energy work session, therapy session, and 2 footbaths later I am less fried and now sharing my thoughts from the other night.  As caregivers this is a spot we have to be very mindful of because if we don't keep ourselves together, we won't be able to take care of our kids.


You all may have noticed that I’ve taken some steps back from my online presence of late  - I’m blogging less, I’m in fewer facebook groups, I’m mentoring much less, I’m posting stuff about me WAY less.  I’m just plain weary.  Its beyond tired, its fatigue to the point of tears from a kind word. Its physical manifestations of tension - I’m currently getting PT for tennis elbow (having never played tennis in my life – and Chiropractic and Massage were not resolving, so at 2 months in I asked for a PT referral), and they’ve decided that my incredibly tense traps are part of the problem so now I get dry needling or cupping done… and it hurts a ton while it happens, but the next day – my neck doesn’t hurt.  Let me rephrase that – this last year my neck has hurt so much every morning that I’ve had to go straight to pain relief sprays and meds, and in fact have purchased something like 8 specialty pillows in the last year – none of which fixed it.  Regular Chiropractic and massage didn’t help that either.  So, now I’m a pincushion 2x a week.  And the root cause is the level of tension in my trapezoids (shoulders)

So Why am I writing this?  Couple of things have this on my mind today.

I had a conversation with my Chiropractor this evening. He’s a special needs dad – his son has severe CP and is wheelchair bound.  We had a conversation about how the general public doesn’t understand the level of exhaustion that comes with special needs parenting and that in some ways he thinks parenting Dominic – who has a completely healthy and functional body, and damaged cognition – is more difficult than parenting his son who has a non functional body and incredible cognition. People see his son, the chair, and they help.  People see Dominic and assume behavior problem / inadequate parenting, and they point.  They don’t offer help.  Autism is in many ways an invisible disability.

This week were our annual renewal meetings for both the Medicaid waiver that pays for most of Dominic’s therapy (and my second job, as his 21hr a week CNA) and The Resource Exchange family support program, which gives us funding for things like respite care.  Both of those meetings were yesterday.  Both were over an hour long, and both were emotionally grueling.  One of the things we have to start thinking about is what we do the day Dominic turns 18 – do we petition a judge for full guardianship?  Do we get power of attorney?  Do we do nothing?  Do we get Dominic SSDI and start charging rent for him to live here?  Do we find him a day program or a job?  Its heavy stuff on top of an already heavy burden and there is absolutely nothing anyone can do to carry that burden for us.

So what do I do about it?  I do at least one self care activity a week – massage, pedicure, chiropractic.  I’ve been seeing a therapist weekly for years who helps me manage the anxiety (yes, all of this comes with a huge level of anxiety about how the world will treat Dominic, how or if Dominic will manage to live independently, will he end up developing full seizures, will he get assaulted at school and not be able to tell us…. That’s a rabbit hole), I’ve joined a spiritual group of like minded women that meet regularly and have ZERO to do with autism.  And I’m making choices to spend more free time outside the autism world than in.  That means that maybe instead of going to the Autism Conferences, I choose to go to women’s retreats. Or instead of spending hours on the phone mentoring new autism moms – I read a book.  Its a weird mindset for someone who has been so active in the autism community, but what I’ve realized this past year as I’ve been slowing stepping away from it – Dominic does better in general when I am not immersed in all things autism.

Its that whole manifesting our thoughts thing. If I focus on Autism, I get autism. It makes me realize that the moms who blazed the trail before me but aren’t around much anymore may be onto something.


 No, this does not mean I am stepping all the way out of the community. It means that I've recognized that full immersion is not healthy *for me* right now. 

Monday, February 12, 2018

Teenagerhood, we have arrived....

Yesterday was Dominic's 13th birthday.  We have a teenager!!!!
We had a really hard time figuring out both what to do and what to get for him because he's a complex mix of physically /hormonally teenager and cognitively maybe 4-5ish.  It complicates matters.

So, we decided to invite the one friend he seems to have made on his own  - a fellow therapy recipient from Shandy Clinic on Tuesday nights, the same family that took Dominic and I along to see the lights at the Zoo right before Christmas.

We met Kane and Jayme at Chuck e Cheeses.  One thing (potentially the only thing) that I appreciate about Chuck e Cheese is that when you walk in, the child and all related adults are stamped with an invisibile number,and you can't leave with a child if you don't match their number.  So its a safe place to give him some independence.  All adults basically spent the time sitting and waiting for the boys to finish the allotted hour of chaotic play.

They did so well.... no meltdowns, no frustration, lots of smiles.

At one point I looked up and they were turn taking at basketball, so I played papparazzi mama and got this video without them seeing.  Spontaneous turn taking, cooperating, communicating.  Its AMAZING.  I promptly texted it to the majority of his therapy team and everyone was Mind Blown.

After the hour at Chuck E Cheese (seriously couldn't take much more than that), we went to Red Robin where Dominic drank at least a gallon of Strawberry lemonade and Jayme  got to see what he's like when we aren't strictly staying away from dairy (he got a birthday sundae).  She was duly impressed at how much control that diet alone gives us. Its a beautiful thing....

Since we had drawn such a blank on what he might like, we decided to give him a Toys R Us gift card and let hgim go shopping on it. It was really fun, and he was so overwhelmed that he stopped before he used all his GC up...

In a funny footnote, my parents sent him a Chewebacca tshirt that arrived today.  He opened it when he got home from school and I asked him what it was.  He proceeeded to give a better than passable Chewie growl... 

Thursday, February 1, 2018

Holy handwriting Batman!!!!!

Dominic‘s second home based occupational therapy appointment of the week is always his fine motor appointment. I told this therapist when she started in December that Dominic needs a signature, and that I want him to learn how to have a cursive signature. To her credit she did not look terrified like everyone else I have said this to over the last few years has.

They have been working on this using a highlighter and having Dominic to trace the cursive that was already written and highlighter. Well yesterday Miss Alyssa brought over those old-fashioned worksheets that have the dotted line in the arrow showing you how to use cursive.

He did a wonderful job of independently using a pen and tracing those dotted lines. So then we asked him to do his signature in cursive on the bottom line they did not already have his name in dotted lines. What is so interesting to me about this is he started by printing his name then he went back and attached the letters together and what looks like cursive. That was such a giant cognitive Leap that we were slack-jawed.

Then We turned his piece of paper over and asked him to write his name in cursive. Actually we asked him to do it twice, this first time I caught the video roughly halfway into it and he did better than he had the second time. The for a child who technically still can’t print on a regular sized lined piece of paper is rather remarkable.  

And here’s the third video

Wednesday, January 31, 2018

Wow it’s the end of January

Catch up post…



So – I am finding it harder and harder to sit down and write out whole blogs about how things are going.  They are going overall relatively well.  Dominic is almost 13 and having teenager attitude regularly. He eats everything that’s not nailed down. We have 5 sessions of various therapies a week – 3 OT and 2 ST.  The speech therapy is in the mornings before school and going very well. Occupational therapy is Monday and Wednesday after school at home, where we are focusing one day a week on cooking and the other day a week on fine motor with a big goal of being able to write his name in cursive.  Tuesday after school we go to clinic based OT at which they are working very hard on reflex integration with a therapist who has Musgatova training.


Protocol wise, while our foundation hasn’t changed (Ioncleanse footbaths and prime my body hemp oil),  we continue to branch out. I saw a wonderful article a month or so ago about reducing androgens herbally, so we’ve been giving that protocol a whirl. We are noticing calmness, and significantly more attempts at back and forth conversation out of Dominic. We’ll take it. 


In the mean time, there’s a new product that some of my close friends have been testing with their kids.   And its been pretty amazing, so we are gearing up to give it a try here.  It actually arrives Monday, so I need to make some freezer space before then.


Dominic is continuing to “earn” money by doing chores. He now has mastered cleaning up dog poop – I had him rubber gloves and a bag and tell him to go pick it up, and without supervision he does so. Next one we are working hard on is vacuuming. He hates it. But he does it with significant verbal prompting.  He gets to earn dimes in all his therapy sessions and at school.   We had homework over the last weekend (it was momentous as he rarely has been given homework due to his quantity of after school intense therapies).  It involved adding up dimes.  It was perfect. What we are hoping to get to is both math (multiples of 10), the concept of earning money and the concept of saving. We are getting there. 


Dominic now cooks dinner for the family every Monday night which is going rather well. I’m writing out in small words the instructions and he really does stay focused on them. I believe he’s reading them at some level, but he struggles hard.  So we keep at it. He is quite proud when he produces a meal. It’s really cute.


We are making big summer plans… as Dominic has aged out of the YMCA camp he’s gone to, we’re hiring a “nanny/companion” for him for the summer who was one of his camp counselors last summer. She and he will hang out about 5 hours a day (from when Daddy goes to work to when Mommy gets done with work) and do things like the zoo, go swimming, go hiking, walk the dogs, etc.  Basically her job will be to keep him active and busy.   I’m excited and apprehensive because I want him busy and having fun, but I’m sad that he won’t have the intentional socialization which is what I liked so much about the Y.  It means that we will be looking for socialization opportunities and scheduling them as often as we can.  

And hey look - he is tall enough to do the laundry!!

Sunday, January 7, 2018

Earning Money... day 1

We kicked off our "chores for dimes" project today.  Here's how it went.

This morning I asked Dominic if he'd like to pick up dog poop for some money that he could save to buy toys with.   He commenced with this:

When  he came in, he excitedly asked me for TOYS. I gave him thirty cents.  We took it to the toy bins... nothing is less than $2.  I told him to get his piggy bank and take everything out.  We counted.  There was $17 in the pig.  I told him he could buy a toy with that if he wanted.  He didn't.  He wants to save that money.  He then got his shoes on and  said loudly "SHOPPING"... Sorry kiddo, you only have 30 cents...

He then went to the chore chart, in the dining room and pointed.  Yes. He picked the one weighted heaviest.  Fifty cents for washing the windows and mirrors.  This happened:

He did a passable job, then washed the dishes, picked up poop again and helped me clean the duck pond.  He ended up earning $2.  But he wants a more expensive toy... so he is holding out until tomorrow.

I'm so surprised on a couple of counts
1.  That he's not going for instant gratification
2. That he didn't cheat and spend his piggy bank
3. That he did all the things!!! I mean really, I had to supervise significantly, but he did all the things!!! I'm exhausted

Tomorrow he will have the opportunity to earn up to a dollar working during OT, and i'm betting he'll do a few chores too. 

Saturday, January 6, 2018

Kicking off big plans... and some updates

A bit before the holidays, our new home based OT and I cooked up a plan by which Dominic would have the opportunity to earn coins (dimes to be exact), during his therapy session - for listening, working, and behaving.    We figured that we'd give him some small bins of small toys to "buy" in varying amounts and we hoped that he'd be able to get the concept of earning, saving, and budgeting while reinforcing good work in session and some math skills.

Over the last couple of weeks, i've tested the waters a few times with chores.  Vacuuming and putting the dishes away specifically.  He can do them with lots of support.  (Seriously, 90 minutes of 'you missed a spot', 'nope, you're not done'... etc). We have decided that Dominic will be able to earn coins for chores and such as well as in therapy.  So i've made a chart, cleaned Walmart out of their clearance toys that looked interesting for him (as well as coupons for things like "trip to the movies" and "dinner out") and put them in bins labelled $1, $5, $10, and $20. 

I've hung this sign in the dining room.

And We are kicking off Monday

In what I term a good sign, when I showed Dominic the sign and asked him what it was for, he replied with a cheery "Toys!"


We survived Winter break pretty well. Its the first year that I took the entire school break off work to hang out with Dominic and I'm astonished at how relaxed i got.


Braces update:  All of Dominic's adult teeth Fit in his mouth!!! And they are all in.  So, the orthodontist was able to do what the dentist deemed impossible, and make room in his upper palate for his adult canines.  His bite is almost top on bottom (instead of very underbitey) and at our next appointment, we're adding rubber bands to continue to pull that top jaw forward.  Thats going to be an interesting experience....  But, he's done so much better than I anticipated for this entire journey that I'm confident we will get him there.


Thursday, December 21, 2017

What a Rollercoaster Month...

I know, I know, Its been a few weeks, AGAIN, since I posted. I seem to have lost my oomph for regular blogging and hope to find it again soon. Maybe its under the sofa?

Anywho...  from my phone and facebook, here's whats happened since then...

December 8, we decorated for the holidays. As is our usual tradition, Dominic wrapped himself.

December 9, we went to the annual CC vs DU hockey grudge match game. Dominic had been asking to go since the one we attended in November.  He loved it, and was a bit more rambunctious than the first, so future games are back to a maybe.  He was very concerned with ensuring that his toy hamster, now with all the paint rubbed off it, made it into each photo...

December 13 was the choir concert. Dominic did a GREAT job of standing where he was supposed to the entire time.  He might have sung three or four words.  He didn't need the para who was there for support except for the whole parading on and off the stage thing.  We went out for sushi after to celebrate his first ever school extracurricular activity.  Also, how handsome is he all dressed up :)

At our center based occupational therapy place, Dominic has made a friend.  I took this picture November 7, and it knocked my socks off. We had walked into the clinic and this little boy asked Dominic to play. I was nonplussed.

Since then, I've gotten to know his family and they invited Dominic and I to join them at the zoo's electric safari Tuesday after therapy.  We had a lovely time, and have made plans to get the boys together again.  Dominic is a little older than Kane and they get along beautifully.

We have finally, after waiting something like 6 months and having one false start, landed with a new home based occupational therapist who will see Dominic twice a week.  She and I did a brainstorming session last night and I'm super excited to ramp up with her in 2018.  he made our dinner with her on Monday.  Chicken soup.  It was wonderful and he's going to be cooking something every Monday

Last night we had OT with Miss Alyssa again.  One of my desires is that Dominic have a signature. In order to have a signature, he needs to learn cursive.  Miss Alyssa is the first teacher/therapist/etc who has not winced when I said that. This was Dominic's first exposure (tracing on top of the highlight) and look how well he did.

Do any of my teacher friends have access to the old style cursive learning tools where they have all the arrows showing you how to go?   If so, can you hook me up?

We also talked about the big picture, the things we need to teach Dominic before he can live independently. We decided that one day a week will be a cooking exercise and one day will be a fine motor exercise and we will come up with some sort of rewards chart that lets him earn coins both nights... and he will be able to SPEND those coins on a small toy, or save them for a large one.   We're hoping to get some math organically, but more importantly start money management and the concept of earning / spending.

If you had told me a year ago that Dominic would be going to hockey games, having school choir concerts and cooking me dinner, I wouldn't have believed you.  The progress we've made this year is unparalleled.  I attribute it to the combination of the Ioncleanse by AMD (which we will never do any less than 3x a week), Prime My Body Hemp oil, appropriate genetic supplementation,  and the persistence of an incredible team across the board - from MAPS doc, to regular chiropractor, DO,  ST and OT's ... I am so pleased with the supports we have in place and actually am allowing myself to be excited about what 2018 will bring.

Wednesday, December 6, 2017

Catch up post

Because I am way behind ...

I've been busy and we've had computer issues, so  between those I haven't been able to post since the Hockey game.  Here's what I have to tell you.

~ Dominic loved that hockey game so much that every day since he has repeatedly said, in the tonation of a query "hockey, soon?".  It got to the point that his teacher wrote down what day the hockey game was in his school planner and he's been checking days off.  We have tickets this weekend. I am seriously considering season tickets next year, he's enjoyed this so much. 

~At the IEP a few months back, we put Dominic into choir to encourage him, because he was always humming along with his movies.  I completely forgot about  it until we got a note home a few days ago saying that his winter concert is the 13th.

let that sink in.

Dominic will be taking part in winter concert.  And yes, he will have a support person.   I don't know what to expect, but I bought him the outfit (black dress pants, white shirt, black shoes) at target the other day, so we're a go!  In related news how is it possible that he is wearing a mens size 8 shoe??????

~ home based Speech therapy continue to be wonderful.  Last night he did the best he's ever done for her identifying the sounds of letters (building block to reading) - he got 16, and his best before that was 12.   Every speech session, at the end, I have to sign Sarah's ipad so that she gets credit for the visit.    At one recent session, she said to Dominic "Take the ipad to your mom so she can sign it", and look what i got handed....

Sarah has a sweet little 6month old and sometimes due to scheduling, she brings him along and i get to play with him while she does therapy. Dominic likes to hang out with him too (and yes i had her permission to share this pic on social media)

~ Thanksgiving was pretty low key. We stayed at home and didn't have company.  The week off from school, tho, made apparent that puberty is here.  The sass out of this child is amazing given that his verbal skills are still pretty low.  We're all working together to provide consistency in environment and routine, and hoping that will help. 

~ speaking of puberty, I think we are nearing the stage where our grocery bill is going to be ridicuous. I bought a costco size package of organic sausages a few weeks ago (so there were 15), and cooked them in the oven. Dominic came home from school and i told him he could have one for a snack before we went out to OT.   I was rushing about and not paying attention (critical error there), and got us out the door, we did OT and we came home and I went to have him eat another ssausage before ST at home... and there were only 8 left.  I checked with Tim. He didn't have any. They weren't accessible by the dogs.  Dominic ate 7 sausages for a snack.   So...

~ Because daddy is now working full time, I'm taking the entire school winter break off work.  That will be the longest vacation I've ever taken, and I'm excited. I am also hoping that said sass and puberty don't make me insane.