Thursday, March 29, 2012

1 in 54 boys....

Well, they’re out.

Released with more of a whimper than a bang, but still released.  Please remember, these are the numbers of 8 year olds with an Autism Diagnosis in 2008, from select populations in the US.   These are already 4 years out of date.

I have been watching facebook and the blogosphere reactions all day.  And frankly, I’m just worn out.   It seems like all the major news outlets are spinning this with the “better diagnosis” treatment and saying that really there’s nothing to worry about.   Where the blogs are passionate and even the National autism Association is calling for the CDC to declare an epidemic.  Not sure how the CDC can do that since they’re pushing the autism is genetic wagon, and we all know that there’s no such thing as a genetic epidemic.
And I’m tired. I’m tired of the rollercoaster we’re on with Dominic.  We just had his monthly parent meeting at Alpine. It went fine, but I’m still tired of it.  His verbals are down a bit from last month, but sentences are up.  Behaviors overall are down, but he’s scripting more instead of playing spontaneously now and they want to nip that in the bud.  We’re going to do the vitamin A protocol this weekend so I warned them to expect dry skin and said I’d send in chapstick.  They have to check the rules to see if that’s allowed without a doctors note (RIDICULOUS).  It just piles up.  And I’m tired.

So, while the rest of the world gears up for Autism Awareness day and month and plans to light everything BLUE, I’ll be plugging away at the day to day grind, because I don’t have the energy to make anyone anymore aware than you already are.   I saw this on facebook, and I really like it. 

Please, if you are a friend of mine do not wear blue for me on April 2nd 'World Autism Awareness Day' for Autism Speaks 'Light it Up Blue' campaign. Do not donate to Autism Speaks at TJ Maxx or Marshalls. They aren't funding the research we so desperately need. They don't speak for me. I am not celebrating Autism this month. You'd have to have been in a coma for the last 10 years not be very aware of Autism at this point. The Awareness campaign is about not actually doing anything. Want to help kids like Dominic? Call your legislators and demand real research and real answers as to why 1 out of every 88 children (2008) will develop Autism.

From the TACA Now Blog:  
“A recent survey of the TACA membership demonstrates that families spend on average over $29,000 out of pocket annually for each child with autism.  Some of our TACA families are spending over $100,000 through debt accumulation to help their child. That is a $100,000 that they do not have to help their child.  This help comes in variety of forms therapy, schooling, medical intervention and more.  All in an effort to provide a child with a chance to lead a “normal” life. Families living with autism are struggling for their basic needs, only to be met with impossible hurdles, funding cuts, and endless waiting lists

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